The short answer
NCI advises contacting insurers about coverage for new treatments or hospice, consulting a lawyer or financial planner, organising banking and investment records, keeping life insurance policies accessible, storing key documents securely, and planning a memorial service in advance to ease the burden on family.
Contact insurance companies about coverage for new treatments or hospice care.
A lawyer or financial planner can help with comprehensive planning.
Organise banking information, investment accounts and credit cards, and record who to contact.
Keep life insurance policies accessible and important papers in fireproof storage or with a legal representative.
Choose how you want to understand this
The full explanation.
Why families do this early
Nobody wants to spend limited time on paperwork. But the other option is worse. A grieving family, in the hardest weeks of their lives, calls a bank to ask questions nobody knows the answers to.
NCI's guidance on making future plans with advanced cancer treats this as normal preparation. The reasoning is simple: doing it now eases the load on the family later, when they are grieving.
Insurance, first
NCI's guidance starts with insurers. It says to contact insurance companies about coverage for new treatments or for hospice care.
This is the item people leave too late most often. Coverage rules shape which options are realistic and where care can happen. Finding this out during a crisis is far worse than finding it out on a quiet afternoon call.
Life insurance gets its own mention too. NCI says to keep accessible records of life insurance policies. A policy nobody can find helps nobody.
Get someone who does this for a living
NCI suggests talking to lawyers or financial planners for full planning.
Families often want to handle everything themselves, partly for privacy and partly to save money. But the risk is real. The details people do not know they are missing — how accounts are titled, what happens to a debt, what makes a document valid — are exactly the details that cause problems later.
Ask your cancer center whether there is a financial navigator or social worker too. They often know what free or low-cost help exists nearby.
Make an inventory
NCI's practical advice is to organize banking information, investment accounts, and credit cards. It also says to write down every financial institution and professional contact.
This is unglamorous work, but it saves families weeks. A family with one list — which bank, which accounts, which adviser, which policy, who to call — is in a much better spot than one working backward through mail that arrives over the next year.
A one-page list of where things are is worth more to your family than almost anything else you could leave them.
Store it where it can be found
NCI says to keep key documents in fireproof storage or with a legal representative. It also says to give family members photocopies of key documents.
You need both parts. Security without access means a locked box nobody can open. Access without security means the only copy sits loose in a kitchen drawer.
The other must-do is simple: tell at least one person where everything is. Be specific enough that they will remember it under stress.
Advance directives sit alongside this
NCI describes advance directives as legal papers that tell your loved ones and doctors what to do for you when you cannot speak for yourself. They let you keep control over your treatment choices.
These papers are medical, not financial. But they belong in the same round of work — same folder, same conversation, same list of people who know where it is. Ask your care team whether they have a copy on file. A directive nobody at the hospital knows about does not help much.
Funeral planning, done early
NCI's guidance is direct here too. Planning a memorial service ahead of time eases the family's burden during grief. It also lets the service reflect what the person actually wanted.
Families who never talked about it end up guessing at readings, music, and arrangements within days of a death, often while disagreeing with each other. Writing down what the person wanted removes that problem entirely.
A reasonable order
If a sequence helps: talk to the insurers, get professional advice, build the inventory of accounts and contacts, store the documents somewhere secure with copies given out, put the advance directive in place and on file, and write down funeral wishes.
None of this takes as long as families fear. The relief afterward is usually what people mention first.
Words to know
Tap any term to see what it means.

Common questions
What should we sort out first?
NCI's list starts with insurance — checking coverage for new treatments or for hospice care — and with getting professional advice from a lawyer or financial planner. Both affect decisions that follow.
Where should the paperwork be kept?
NCI suggests fireproof storage or keeping documents with a legal representative, and giving family members photocopies of key papers.
Is planning a funeral in advance morbid?
NCI presents it as practical. It says planning a memorial service ahead of time eases the family's burden during grief, and lets the service reflect the person's own preferences and values.
What information does my family actually need from me?
NCI's guidance points to documenting financial institutions and professional contacts, alongside banking, investment and credit card information, so that nobody has to reconstruct it later.
Questions to ask your doctor
Being prepared helps you get the most out of your appointments. Save or print these questions.
Tap a question to save it to your list (kept on this device).
Your next step
Turn this topic into questions for your next appointment.
Speak With Trained Specialists & Human Navigators
Cancer Explained provides educational guidance, but does not replace trained specialists, social workers, or your medical team.
Talk to a trained cancer information specialist
Free, confidential assistance from NCI Cancer Information Service via phone, chat, or email.
Contact your oncology team
Locate after-hours contact numbers, portal messages, or urgent triage phone lines.
Find a patient navigator
Get one-on-one help with appointments, logistics, translation, and care coordination.
Find a genetic counselor
Discuss inherited mutation risk, family history, and genetic testing options.
Find an oncology social worker
Access emotional counseling, family support groups, and mental health resources.
Find a financial navigator
Locate copay assistance foundations, grant programs, and lodging/travel support.
Find a clinical-trial specialist
Search matching studies and speak with NCI trial information specialists.
Get urgent help
Immediate emergency guidance for fever (>100.4°F during chemo), severe pain, or shortness of breath.
Help Us Improve This Guide
Did this explanation answer your question and help you determine your next step?
Know someone who needs this?
Plenty of people are looking for something like this and do not know where to start. If this would help a friend or someone you love, send it on — we have written an opening line so you do not have to stare at an empty message. You can change every word of it.
Your message is written and sent in your own email or messaging app — we never see who you send it to, and nothing is added to any list.
Plain-language explanation of the published sources cited on this page. AI-assisted, source-checked, not clinician-reviewed.
Sources last checked: 2026-08-11 what this meansLast updated: 2026-08-11Next planned review: 2027-08-11
How this page was created
Cancer Explained does not originate medical claims. Every page restates guidance already published by the National Cancer Institute, the CDC, the USPSTF and the FDA, in plain language, with the source cited so you can check the original yourself. AI does the translating and organizing; automated checks test claims, citations, clarity and safety before anything publishes. We do not employ clinicians and do not intend to — our work is translation and navigation, not clinical judgment. Nothing here is personal medical advice, and no page can account for your particular situation.
Editorial status — Source checked. This page was written with AI assistance and checked line by line against the sources listed on it. That confirms the sources support what the page says. It is not a medical review, and it does not confirm the page is complete or right for your situation.
General education. Low-risk educational or organizational content. Medical facts are cited to authoritative sources.
Human medical review: not completed. Pages here are not signed off by a clinician before they publish. That is not an oversight we are quietly working around: we restate published guidance and cite it, so the authority belongs to the source rather than to us, and every page names where its claims come from — you can verify us instead of trusting us. Where a volunteer clinician has reviewed a page, their name and credentials appear on it; where no name appears, no clinician has checked it. We are glad to have reviewers and are recruiting them, and we do not hold pages back waiting for one. Use this site to understand your situation and to ask better questions of the people treating you.
How this page was created
Cancer Explained does not originate medical claims. Every page restates guidance already published by the National Cancer Institute, the CDC, the USPSTF and the FDA, in plain language, with the source cited so you can check the original yourself. AI does the translating and organizing; automated checks test claims, citations, clarity and safety before anything publishes. We do not employ clinicians and do not intend to — our work is translation and navigation, not clinical judgment. Nothing here is personal medical advice, and no page can account for your particular situation.
Editorial status: Source checked — This page was written with AI assistance and checked line by line against the sources listed on it. That confirms the sources support what the page says. It is not a medical review, and it does not confirm the page is complete or right for your situation.
Human medical review: not completed. Pages here are not signed off by a clinician before they publish. That is not an oversight we are quietly working around: we restate published guidance and cite it, so the authority belongs to the source rather than to us, and every page names where its claims come from — you can verify us instead of trusting us. Where a volunteer clinician has reviewed a page, their name and credentials appear on it; where no name appears, no clinician has checked it. We are glad to have reviewers and are recruiting them, and we do not hold pages back waiting for one. Use this site to understand your situation and to ask better questions of the people treating you.
Read more about our editorial process, our use of AI, and our corrections policy.
Spotted a problem? Report an error — a factual mistake, broken or outdated source, confusing wording, or anything that seems unsafe. Please do not include names, medical record numbers, dates of birth, addresses, or other identifying medical information in your report.
After using this page, do you understand what to do next?
Anonymous — we only record the answer, never who gave it.
Related articles
Still have questions?
Educational answers, plain language
Free to print and share
